A Social Network and MOOC for Health Informatics Professionals and Students
Google health is to be discountinued. There have been lots of blog discussions about whether or not PHRs have a future.
My opinion is that we'll see more usage of "Patient Portals" by healthcare organisations (as opposed to PHRs where patients add to the record).
For many long-term conditions, we see something similar to the PHR concept from sites like Patient's Like Me, where users can record their information but it might not be integrated with their hospital records.
In the long term, I think that many of the ideas in the PHR concept will probably get incorporated into patient portals, but in the short term it will be more about booking appointments and viewing test results (and not adding anything to the record).
What do you think?
Great posts on an interesting but complicated problem. Doesn't look like most patients have the time or expertise to input their own information so patient portals tethered to an electronic health record make sense and work well for organizations like Kaiser Permanente. On the other hand, not all docs plan to have EHRs and information in a patient portal is not easily sharable.
While Google Health goes away Microsoft HealthVault is ramping up big time. Not only have they added the ability to input your health information so they are no longer just a "vault", they are members of the Direct Project. This means that a physician who uses an EHR that is direct compliant can send a secure email message with an attachment or send a CCD that gets parsed into the correct section of the EHR but the patient can send secure messages back to the physician (requesting refills, referrals, etc).
Now that is what is in the works but it still may be too much work for the physician (not reimbursed but this is a meaningful use requirement). I would be interested in the opinions of others about whether the Direct Project will make a difference in physician-patient communication or will it sit idly on the sidelines? Cheers......Bob
The phrase I like to use is "Retrieving useful information from medical records would not go like Google."
Medical records look like they are written in English (if they are from the English speaking world, of course) but they are actually written in completely different language. I don't mean they are written in Latin or Greek but it is a highly context-sensitive language similar to, say, Japanese.
Google translations between Japanese and English is still terrible unlike translations between European languages. Japanese language changes words, phrases and even grammars according to its context, just like medical language.
To master medical language, you need considerable understanding of cultures and shared knowledge behind the actual words communicated, just like Japanese.
So for pulling out information from medical records in plain English, you need a human librarian (i.e. a clinical coder) to sort the information, not a computer one. I think that is where Google Health failed.
P.S. I sometimes joke if you want to identify a Terminator, the human rebel force should make Japanese their official language.
PHR will definitely have huge role in future but it will take some time. I think it still early for PHR to be broadly used as EHR which act as base or backbone still has some serious issues to be solved like integration and security. Solving these issues will make it possible to have easy to use and secure tethered PHR that can attract patients.
The other issue that may be resolved over time is users computer skills. The younger population that seems to be computer savvy currently are not involved in health records as older generation who generally have chronics diseases and needs to have their records available. By the time when this generation starting to need their records, PHR will be essential and well developed.
Good point Abdulrahman. I would point out that young people will get involved sooner rather than later because many are already involved in helping their parents take care of their illnesses.
I know many children of elderly parents who would willingly pay for a system that help them monitor and care for their parents.
Agree with the concept but I'm not sure how to implement since it turns the patients into virtual doctor in a position when his looking for treatment or second opinion with people that might not be professional in giving these advises. Or in other cases he can get access to his medical result even before he sow the doctor (for me it's OK – I'm not sure that everyone can manage that kind of information).